Tonight we had what I hope to be Jack's last formal evaluation... although I know evaluations will continue to take place as we start to identify Jack's program of care. Next Tuesday a team of 6 from the school district will come to our house to deliver the formal report from the school district. I know it will be long. The meeting starts promptly at 8am. I haven't figured out the kids schedule for that morning. I'll think about it more tomorrow.
We received the formal written medical diagnosis yesterday. It was 14 pages long - single spaced, mostly narrative, along with many, many results from the various standardized tests either Paul and I have completed via questionnaires or from the medical observations conducted on Jack. I started to read the diagnosis - but it was too painful to read. I began to browse the report and ultimately decided to stop reading. I knew the content, I knew the story... it had been my life for the past 18 months. I decided now was not the time to relive it.
Jack and I went to Trader Joe's tonight. I'd consider our trip out a success. No meltdowns. Tomorrow I'll be starting a scientific log to track Jack's activities, behaviors and patterns. I'll be tracking the basics like sleep, food, etc. But also others like - how hard was it to get dressed - and maybe most importantly - his ABCs - Antecedent, Behavior, Consequence. The goal is to scientifically identify repeated behaviors that we want to correct. 2 weeks from today we will go to the GFCF diet. I'm starting to work with Jack to identify some favorite GFCF foods to help ease the upcoming transition.
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